Lupus Foundation of America Heartland Chapter

Address

8050 Watson Road
Suite 169
Saint Louis, MO 63119

(314) 644-2222

www.lupus.org/heartland

Description:

Through a comprehensive program of research, education, support and advocacy, leading the fight to improve the quality of life for all people affected by lupus. Services include Physician Referrals, Disease/Disability Information, Summer Camps, Health/Disability Related Support Groups, and Workshops/Symposiums.

Hours:

Mon-Fri - 9:00am to 5:00pm

Handicap Accessible?

Yes

Is Shelter?

No

Related Resource

Date of Official Change:

March 26, 2024

Employer ID:

510192362

Year Incorporated:

1977

Address Listings

Physical (Primary)

8050 Watson Road
Suite 169
Saint Louis, MO 63119

Contacts

Amy Ondr

President/CEO

(314) 644-2222

aondr@lfaheartland.org

Phone Numbers

Main

(314) 644-2222

Toll Free

(800) 958-7876

Legal Status:

Non-Profit

Description

Lupus Community Education: Provides information about Lupus such as educational conferences, workshops, printed materials, community outreach and more. SELF: Strategies to Embrace Living with Lupus Fearlessly - https://www.lupus.org/SELF SELF is a free online self-management program designed to help people with lupus live their best life. SELF is tailored to support people with lupus in managing symptoms, stress, medications and working with their health care team. Take Charge - https://www.lupus.org/resources/take-charge The weekly education email series is designed to give people with lupus, including those recently diagnosed, tips and resources that can help them better manage their lupus and its everyday challenges. National Resource Center on Lupus - https://www.lupus.org/resources A collection of up-to-date resources and information on lupus. The Resource Center educates, empowers and connects you to lupus resources, programs and support services. Health Education Specialists – https://www.lupus.org/care-support/ask-a-health-educator or 1-800-558-0121 ext. 136 Our health education specialists are available to answer questions and provide caring support to people with lupus. Health education specialists are specially trained to provide people affected by lupus with non-medical counseling, disease education, information, and helpful resources. Bilingual (Spanish) health educators are also available. The Expert Series - https://www.lupus.org/resources/lupus-the-expert-series The Expert Series is an educational podcast that features empowering conversations with leading lupus experts that focus on helping you live well with lupus LupusConnect - https://www.lupus.org/resources/lupusconnect LupusConnect™ is an online community where people affected by lupus can engage with others to share experiences, find emotional support and discuss practical ways to live and cope with the disease.

Hours

Mon-Fri - 9:00am to 5:00pm

Required Documents

No Documentation Required

Eligibility

No Restrictions

Fees

No Fees

Intake Procedure

Visit website or Call For Service

Languages

English

Service Area

- Missouri State - Calhoun, Clinton, Greene, Jersey, Macoupin, Madison, Monroe, Randolph and St. Clair Counties in Illinois -Kansas state

Geography Served

    If a location is grayed out it means that only certain areas within it are covered. The areas with complete coverage are listed in black.

  • Illinois
    • Calhoun County
      • Clinton County
        • Greene County
          • Jersey County
            • Macoupin County
              • Madison County
                • Monroe County
                  • Randolph County
                    • Saint Clair County
                    • Kansas
                      • Missouri
                        Edit Service DetailsClick here to see this service (LH-2700.1700) and related services within the Service Tree.

                        Description

                        Lupus Support Groups: Provides a support group for individuals with lupus along with caregivers, family members and friends of individuals with lupus. Available both online and in person.

                        Hours

                        Call For Hours

                        Required Documents

                        No Documentation Required

                        Eligibility

                        Individuals with lupus, caregivers, family members and friends

                        Fees

                        No Fees

                        Intake Procedure

                        Call for service

                        Languages

                        English

                        Service Area

                        - Missouri State - Calhoun, Clinton, Greene, Jersey, Macoupin, Madison, Monroe, Randolph and St. Clair Counties in Illinois - Kansas State

                        Geography Served

                          If a location is grayed out it means that only certain areas within it are covered. The areas with complete coverage are listed in black.

                        • Illinois
                          • Calhoun County
                            • Clinton County
                              • Greene County
                                • Jersey County
                                  • Macoupin County
                                    • Madison County
                                      • Monroe County
                                        • Randolph County
                                          • Saint Clair County
                                          • Kansas
                                            • Missouri
                                              Edit Service DetailsClick here to see this service (PN-8100.3000) and related services within the Service Tree.

                                              Description

                                              Provides a listing of physicians who treat lupus is available.

                                              Hours

                                              Mon-Fri - 9:00am to 5:00pm

                                              Required Documents

                                              No Documentation Required

                                              Eligibility

                                              No Restrictions

                                              Fees

                                              No Fees

                                              Intake Procedure

                                              Call for service

                                              Languages

                                              English

                                              Service Area

                                              - Missouri State - Calhoun, Clinton, Greene, Jersey, Macoupin, Madison, Monroe, Randolph and St. Clair Counties in Illinois -Kansas State

                                              Geography Served

                                                If a location is grayed out it means that only certain areas within it are covered. The areas with complete coverage are listed in black.

                                              • Illinois
                                                • Calhoun County
                                                  • Clinton County
                                                    • Greene County
                                                      • Jersey County
                                                        • Macoupin County
                                                          • Madison County
                                                            • Monroe County
                                                              • Randolph County
                                                                • Saint Clair County
                                                                • Kansas
                                                                  • Missouri
                                                                    Edit Service DetailsClick here to see this service (LH-2600.6500) and related services within the Service Tree.

                                                                    Description

                                                                    Annual Summer Jam Girls Retreat The Summer Jam Girls Retreat is a weekend camp for girls aged 12-19 who have lupus. Campers will be supervised by compassionate camp counselors who are also living with lupus. This is a great opportunity to meet others your age who understand your health struggles while also learning about your disease and having fun!

                                                                    Hours

                                                                    Friday, June 7, 2024 to Sunday, June 9, 2024

                                                                    Required Documents

                                                                    No Documentation Required

                                                                    Eligibility

                                                                    Girls ages 12-19 years old with lupus

                                                                    Fees

                                                                    Call for information

                                                                    Intake Procedure

                                                                    Call or Visit Website https://www.lupus.org/heartland/heartland-chapter-homepage

                                                                    Languages

                                                                    English

                                                                    Offered Outside of Physical Location

                                                                    Yes

                                                                    Service Area

                                                                    - Missouri State - Illinois State - Kansas State

                                                                    Geography Served

                                                                    None

                                                                    Edit Service DetailsClick here to see this service (PL-6400.1500-820) and related services within the Service Tree.

                                                                    Description

                                                                    Provides a variety of programs and webinars to educate people about lupus and how to best manage the disease. Lupus & You: Answers. Advocacy. Action. - https://www.lupus.org/resources/lupus-and-you A free educational series where people with lupus, their family and friends have the opportunity learn about the latest in lupus research and helpful resources for managing the disease. You’ll also hear about ways you can engage in advocacy and awareness efforts.

                                                                    Hours

                                                                    Call For Days/Hours

                                                                    Required Documents

                                                                    Call For Details

                                                                    Eligibility

                                                                    - Lupus diagnosis - Family and/or caregivers

                                                                    Fees

                                                                    No Fees

                                                                    Intake Procedure

                                                                    Call for service or visit website at at www.lupus.org/heartland

                                                                    Languages

                                                                    English

                                                                    Service Area

                                                                    - Missouri State - Calhoun, Clinton, Greene, Jersey, Macoupin, Madison, Monroe, Randolph and St. Clair Counties in Illinois - Kansas State

                                                                    Geography Served

                                                                      If a location is grayed out it means that only certain areas within it are covered. The areas with complete coverage are listed in black.

                                                                    • Illinois
                                                                      • Calhoun County
                                                                        • Clinton County
                                                                          • Greene County
                                                                            • Jersey County
                                                                              • Macoupin County
                                                                                • Madison County
                                                                                  • Monroe County
                                                                                    • Randolph County
                                                                                      • Saint Clair County
                                                                                      • Kansas
                                                                                        • Missouri
                                                                                          Edit Service DetailsClick here to see this service (TJ-6500.9500) and related services within the Service Tree.

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